Our Magnum Opus

Here are some more pictures of us and Ezra. When the schedule for the OR came out last night Ezra was not listed. Both of us were crushed after looking forward to this starting point for what seemed like forever. We called the surgeon and the OR to see what had happened. Our surgeon came to the NICU and told us that he has a big case first thing Wednesday morning and Ezra would be an "add on". He preferred to have the jaw distraction be his first case rather than something he would be doing after another big procedure. As you may imagine, we were more than willing to have a fresh surgeon than otherwise. Also, he is still pushing for the full sleep study which was canceled for a second time on Monday.

Dr. Siddiqi showed us a pamphlet with pictures of the distraction devices used in the procedure. Nothing you wouldn't see in a medieval museum except that they are made out of titanium and surgical grade stainless steel and look like something you would see in the space shuttle.

So, we will probably be looking at Friday or Monday depending on his schedule and how the sleep study drama works out. Thanks again for all your love and support.
Jami really likes holding him.

The bed Ezra is in and the equipment that surrounds him is the most technically advanced and expensive medical equipment available for the care of new born babies. This picture shows the newest technology in feeding babies through a tube. A plastic syringe filled with milk is hooked to a rubber band which is attached to the above light with a very special and specifically designed safety pin. You would never want to try something like this at home; it is a technique reserved for those who have undergone years of training in the medical field.